Tuesday, May 4, 2010

Trisomy 18

I really apologize for not uploading lately, I have been very busy with school and projects, also having to pack to move. Anyways, I don't want to make this tooo long, but I wanted to talk about a couple stories I read earlier in the year while doing a project.

I found a website with different stories about babies born with Trisomy 18, one/two story(ies) that really stuck out in my mind were a story about two sisters, both born with Trisomy 18. When Trisomy 18 is diagnosed, doctors will tell the parents that the baby probably won't make it past 24 hours. The first sister born in this family was Rachel. When her parents found out she had Trisomy 18, the doctors told her "why bother surgery because the outcome is fixed." Her parents then said "BECAUSE SHE'S NOT DEAD YET AND BECAUSE SHE MIGHT LIVE!" This is very true, you can't just give up. When this story was written, Rachel was to be turning 4 in April. When her sister Reagan, was born, her parents yet again found out their child was diagnosed with Trisomy 18. The sisters parents never gave up on either one of them, but three days after Reagan was born, she died.
These stories were very incredible and I highly suggest reading them,
Rachel- http://www.prenatalpartnersforlife.org/Stories/StoriesTrisomy18_Rachel.htm
Reagan- http://www.prenatalpartnersforlife.org/Stories/StoriesTrisomy18_Regan.htm

On these sites, there are also pictures of these children.


Now that you know they're stories, how will you feel the next time you see someone with a condition that isn't "normal"? Would you look at them the same way you may have before you read these stories? I know I haven't, every time I see someone that has a condition like Rachel and Reagans, and many others, I feel sorry for them. Not in a bad way, but I wish there could be something I could do for them. I feel the pain that the child's parents go through everyday, not knowing if it could possibly be their child's last. I'm sure the parents love their children just as if you or I were their child. Not more, not less, they just go through more. I hope one day I could get the chance to be very close with someone like this, to show them that it doesn't matter how you look, or if your sick, or whatever it is. You always have friends by your side.

I had cancer at a very young age, and my friends were there for me, along with my family and teachers. They were what have made my life so great. I love speaking to other people about what sets them aside, stories such as these ones, share some with me, I'd love to hear them : )

That's all for now, and hopefully more ASAP!
Until next time,
Skylar : )


Again I apologize for not being able to work on this lately!

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